Connect with one of the amazing patient organisations representing your condition!

The Brittle Bone Society is the sole organisation specifically set up to address the needs of people born with Osteogenesis Imperfecta (OI). This charity seeks a world in which the needs of people living with OI are better understood, respected and fully met.

Do you need support for OI? Visit the Brittle Bone Society’s website via the button below:

XLH UK is the only registered charity which specifically supports those with X-linked hypophosphataemia (XLH) and related disorders XLH and related disorders in the UK. Their mission is to help those they support through research, support and advocacy.

Do you need support for XLH or a related condition? Visit XLH UK’s website via the button below:

FOP Friends was registered as a charity in 2012 and aims is to further research into Fibrodysplasia Ossificans Progressiva (FOP) and related conditions by supporting current and future research projects, and support those living with FOP and their families.

Do you need support for Fibrodysplasia Ossificans Progressiva or a related condition? Visit the FOP Friends website via the button below:

The Fibrous Dysplasia Support Society (FDSS) was formed in 2007 by a group of patients, and their carers, who are affected by Fibrous Dysplasia or McCune-Albright Syndrome (MAS). It exists to provide information and support by sharing our knowledge and experience of the condition with those who would like to know more.

Do you need support for Fibrous Dysplasia or McCune-Albright Syndrome? Visit the FDSS UK website via the button below:

Metabolic Support are a charity that has, since 1981, supported people living with Inherited Metabolic Disorders (IMDs) and their communities. Under our remit of helping people living with IMDs, we offer support to a number of rare bone diseases and can provide a wide variety of services from individual support and advice to advocating for your rights at the highest levels as well as much more.

Need support for your IMD? Get in touch with us via our contact form or give us a call via the number on the contact page: