The "Think Ammonia!" Campaign
High ammonia kills and people are dying because of overlooked symptoms.
The “Think Ammonia!” campaign aims to improve outcomes for people experiencing high ammonia by ensuring people know the signs, test earlier and save lives. This comes after the death of Rohan Godhania, who was only 16 when he died, an outcome that may have been different if high ammonia was diagnosed and treated.
Our campaign is raising awareness with healthcare professionals and the public to ultimately increase the number of ammonia tests carried out to ensure timely diagnosis and treatment.
Read the Think Ammonia: Year One Report
Our Think Ammonia year one report is now live!
This campaign was inspired by your stories and honours the memory of 16-year-old Rohan Godhania and others who have experienced disability or death because of high ammonia. This report shares the progress made possible through collaboration and sets out the next steps to improve outcomes globally.
Read the report by clicking the button, below 👇
Information for the public
Are you interested in learning more about high ammonia, how to spot the symptoms and what to do if you’re experiencing this condition?
Click the button below to access this information:
Guidance for HCPs
Hyperammonaemia is a time sensitive medical emergency, requiring rapid diagnosis and treatment. Visit our hub of hyperammonaemia guidance to learn more.
Click the button below to access the guidance:
The Posters
We’ve created downloadable posters for the general public and healthcare professionals. These are designed to help people know the signs, test earlier and save lives.
Click the button below to access the posters:
The Stories
We’ve been talking to our communities to share their hyperammonaemia stories and to find out what they’d like to see changed to improve outcomes for other families.
Visit the next page to explore these stories:
International
We want to ensure access to timely diagnosis and treatment internationally for high ammonia. That’s why we’re working with partners to translate our materials.
Click the button below to access these materials:
Social Media Pack
Awareness is essential. Help us spread the word about high ammonia and the “Think Ammonia!” campaign to ensure change happens in order to save lives.
Click the button below for our social media pack:
The Survey
In 2023, we launched our hyperammonaemia survey which helped capture insight from our communities about their experience of hyperammonamia.
Click the button below to read the results:
OTC Research
People living with Ornithine Transcarbamylase Deficiency are at risk of hyperammonaemia. We’ve put together a page to share research opportunites for this condition.
Click the button below to learn more and get involved:
Year Two Sponsors
The first year of our Think Ammonia campaign was fully funded by MSUK. In year two, we have obtained support to build upon the successes already achieved!
Click the button below to learn more:
