An experienced charity leader and change-maker...
Hi, I’m Kirsty! An experienced charity leader and change-maker who recently joined Metabolic Support UK from my former role as CEO of Transport for All, a charity that campaigns for the rights of disabled and older people in the UK to access public transport.
My background is working with both the public and private sectors to achieve positive, sustained change and to promote the links between better services, well-being and community integration and I’ve also worked for Sense charity, Diabetes UK and Help for Heroes.
I’m a passionate advocate of equitable access for disabled people and those living with long-term conditions and across the arts, cultural, educational, health transport sectors. Prior to moving full-time to charity leadership, I worked as a world expert on disability and culture and worked in Argentina, Singapore and across North America, sharing my Relaxed Performance and Arts Access model.
Listening to and understanding each individual journey...
Hi, I’m Helen and I’m the longest serving member of the team. It’s my role to offer practical and emotional support to families and those living with Inherited Metabolic Disorders.
It’s wonderful to stay in touch too and hear how people are getting along! Within my role, I oversee our Patient Communities programme and bring people together for peer support.
It is a real privilege to be in this position and I have a passionate interest in listening to and understanding each individual journey so we can gain an important picture of how IMDs impact day-to-day lives and identify where change or further support and advocacy work may be required.
Working to ensure people living with IMDs are heard and understood...
Hi, my name is Laura and I am the Head of Insight & Advocacy at Metabolic Support UK.
I joined MSUK with a background in Health Economics and Outcomes Research. I previously worked for a large research consultancy where I led on a wide range of research projects to help improve patients’ access to medicine.
At MSUK, I continue to lead and conduct research to gain insight into the lived experiences of patients and families affected by IMDs to ensure that their voices are heard and understood in e.g. clinical trials and health technology appraisals. Besides this, I work closely with our team and our corporate partners to elevate the services we provide and extend our reach within the IMD landscape.
Working to elicit change to improve the lives of our communities...
Hi, I’m Jonathan and I work as the Campaigns and Communications Lead for Metabolic Support UK.
My background is in genetics and global health and I’ve also worked for the NHS within a busy biomedical science laboratory for over four years undertaking the analysis of samples to ensure you receive the right treatment and diagnosis.
I act as an activist and key partner with our communities to elicit change, utilising policy, data and research to develop creative campaigns with measurable goals to ensure action is taken to improve the lives of people living with inherited metabolic disorders.
Bridging research and policy to amplify the voices of those affected by IMDs...
Hi, my name is Elise, and I work as the Policy and Research Officer at Metabolic Support UK.
I have recently been awarded my PhD in Genetics and Development and have previously worked on projects in both the charity and pharmaceutical sector. I am excited to bring together my experience across various sectors to contribute to meaningful change in the IMD community.
My role at MSUK has two parts. Firstly, I am helping to conduct research into the lived experiences of patients and families affected by IMDs. Secondly, I am evaluating and coordinating responses to government policy that directly impact the IMD community. Both parts will directly assist decision makers helping to ensure that patient voice is heard and considered in all aspects of care.
Fostering partnerships and amplifying the voices of those living with IMDs...
Hi, I’m Sarah, Community Lead at Metabolic Support UK.
I’ve spent my entire career working closely with the public, across both the NHS and the voluntary sector. I’m deeply passionate about making sure people feel heard, supported, and empowered — especially when it comes to shaping the services and policies that affect their lives.
As a parent carer, I bring both professional and lived experience to my role. This dual perspective drives my commitment to building inclusive, compassionate communities where every voice matters.
I’m thrilled to be part of MSUK and excited to help develop our community. My focus is on building collaborative partnerships and ensuring that individuals living with IMDs have the opportunities, confidence, and the right platform to share their experiences. Together, we can influence policy and drive meaningful change.
I look forward to connecting with you — whether online, out in the community, or at one of our events!
Helping create engaging, impactful communications...
I’m Sam, the Community Connector at MSUK. I’ve always had a passion for design, which led me to study Graphic Design at Staffordshire University. Over the past 8 years, I’ve been self-employed, working on a wide range of creative projects.
I’m so excited to be part of the MSUK team and to contribute to the amazing work they’re already doing. I’m especially looking forward to helping create engaging, impactful communications that support the charity’s mission and connect with the community.
Providing high-level administrative support to the team to help achieve objectives...
Hello, I’m Kerry-Sue, a freelance Virtual Assistant providing Administrative Support for Metabolic Support UK.
With over 25 years of experience in both the public and private sectors, I bring a wealth of knowledge and a unique perspective to working with charitable organisations. My role involves providing high-level administrative support to the team, enabling them to fulfil their roles effectively and achieve their objectives.
I am passionate about contributing to meaningful causes and ensuring operational excellence.
