Metabolic Support UK would like to keep you updated about the latest developments in the assessment of triheptanoin, also known as Dojolvi. This medicine is currently being assessed by the National Institute for Health and Care Excellence (NICE) in England.

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Metabolic Support UK would like to keep you updated about the latest developments in the assessment of pegzilarginase, also known as Loargys. This medicine is currently being assessed by the National Institute for Health and Care Excellence (NICE) in England. 

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Metabolic Support UK would like to keep you updated about the latest developments in the assessment of fosdenopterin, also known as Nulibry or cPMP. This medicine is currently being assessed by the National Institute for Health and Care Excellence (NICE) in England and the Scottish Medicines Consortium (SMC) in Scotland.

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Metabolic Support UK are delighted to share that following a second committee meeting, NICE have now released final draft guidance to recommend the use of Asfotase alfa (Strensiq) for the treatment of all patients with perinatal and infantile forms of paediatric-onset hypophosphatasia and additional recommendations for those with juvenile forms who meet the entry requirements set by the Managed Access Agreement.