Ensuring the IMD community are able to live well today, tomorrow and beyond.
We support over 2000 conditions
We offer support around the world
We offer support to 1.43M+ people
We support over 2000 conditions
We offer help to 195 countries
We offer support to 1.43M+ people
We’re here for everyone living with an inherited metabolic disorder. Whether life feels steady or overwhelming, you are not alone.
So, what do we do?
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Offering one-to-one support when you need it most.
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Creating spaces to connect with others who understand.
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Sharing knowledge you can trust, backed by evidence.
- Working to improve access to the things you need to live well.
Here for life, we’re with you every step of the way!
Hear the latest from Metabolic Support:
Check out our latest news updates. Want to read more? Visit our latest news section of the site.
Community Conference 2026
Taking place: 14th-15th November
Discover everything you need to know about our 2026 Annual Community Conference, including the programme, venue information and what to expect on the day. Secure your FREE tickets now! 🎟️
Click the button below to get your FREE tickets:
Celebrating HCU Awareness Month: A Global Collaboration for 2027
15th October 2026
October is Homocystinuria (HCU) Awareness Month! We’re proud to be working alongside HCU Network America and HCU Network Australia on an exciting HCU community gathering in 2027.
Our Community Lead, Sarah Jones, spoke to RARE Revolution about the importance of collaboration, bringing the HCU community together and ensuring the event is shaped by the voices of people living with HCU and their families. 💬 “When we collaborate and align our visions and goals, it has a powerful impact for our community.”
Click the button below to read the full article:
Your Monthly Medicines Roundup for August & September
1st October 2026
Interested in the reading our Monthly Medicines Roundups for August & September
Click the button below to find out more:
New mitochondrial disease treatment available through UK early access scheme
2nd September 2026
A new treatment for a mitochondrial disease, thymidine kinase 2 deficiency (TK2d) is now available in the UK through the Early Access to Medicines Scheme.
Click the button below to find out more:
