Ensuring the IMD community are able to live well today, tomorrow and beyond.
We support over 2000 conditions
We offer support around the world
We offer support to 1.43M+ people
We support over 2000 conditions
We offer help to 195 countries
We offer support to 1.43M+ people
We’re here for everyone living with an inherited metabolic disorder. Whether life feels steady or overwhelming, you are not alone.
So, what do we do?
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Offering one-to-one support when you need it most.
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Creating spaces to connect with others who understand.
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Sharing knowledge you can trust, backed by evidence.
- Working to improve access to the things you need to live well.
Here for life, we’re with you every step of the way!
Hear the latest from Metabolic Support:
Check out our latest news updates. Want to read more? Visit our latest news section of the site.
Metabolic Support Community Survey
10th July 2026
Help shape how we support people living with Inherited Metabolic Disorders (IMDs).
Click the button below to respond to our community survey:
New mitochondrial disease treatment available through UK early access scheme
2nd September 2026
A new treatment for a mitochondrial disease, thymidine kinase 2 deficiency (TK2d) is now available in the UK through the Early Access to Medicines Scheme.
Click the button below to find out more:
Check out our upcoming clinic visits
25th August 2026
We have some amazing clinic visits planned in for the coming months…
Click the button below to find out more:
Community Conference 2026
Taking place: 14th-15th November
Discover everything you need to know about our 2026 Annual Community Conference, including the programme, venue information and what to expect on the day. Secure your FREE tickets now! 🎟️
Click the button below to get your FREE tickets:
