Your Stories: Bereavement
Behind every diagnosis is a family, a life and a story. Here, members of our inherited metabolic disorder community share their experiences of bereavement with honesty and courage. These reflections honour those we have lost and remind us that no one walks this path alone.
Explore the stories and join us in remembering and learning from their lives:
Read Abdullah's story 💜
Abdullah was diagnosed with Molybdenum Cofactor Deficiency type A (MoCDA).
Abdullah found peace in December 2022 and it is with enormous gratitude that Sabiha has allowed us to share the story of her son and her continued journey of learning, connections, and support with a huge focus on wellbeing.
Click the button below to read his story:


